Hi everyone in the Cystic Fibrosis (CF) world!!!
I'm so excited to communicate with all of you around the world regarding your CF experiences. All your thoughts, fears, concerns, symptoms, discouragements and triumphs, that go along with having CF.
I would like to tell you about myself. My name is Amy....(many people call me AmuLu).
This is the most personal thing I'm putting out there...I have Cystic Fibrosis. It has taken me 6 years to finally accept that I have Cf. I am 31 years old, and was diagnosed later in life, and I believe it is the loneliness disease out there. I want to communicate with you....to know I am not alone in this experience with CF.
I hope you feel welcome and comfortable sharing your life and hearing about my trials and tests with CF. It would be amazing to read how alike we really are.
So, welcome CFers, family and friends!
"We can get through this disease together!"
AMYLu
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